Communicating With and About People with Disabilities
The Americans with Disabilities Act (ADA), other legislation, and the efforts of many disability organizations have begun to improve accessibility in buildings, increase access to education, open employment opportunities, and develop realistic portrayals of persons with disabilities in television programming and motion pictures. However, more progress needs to be made. Many people still view persons with disabilities as individuals to be pitied, feared, or ignored. These attitudes may arise from discomfort with individuals who are perceived to be different or simply from a lack of information. Listed below are some suggestions on how to relate and communicate with and about people with disabilities. We must look beyond the disability and look at the individual’s ability and capability—the things that make each of us unique and worthwhile.
Words
Positive language empowers. When writing or speaking about people with disabilities, it is important to put the person first. Group designations such as “the blind,” “the deaf” or “the disabled” are inappropriate because they do not reflect the individuality, equality, or dignity of people with disabilities. Following are examples of positive and negative phrases. Note that the positive phrases put the person first.
Affirmative Phrases Negative Phrases
person with mental retardation retarded, mentally defective
person who is blind, person who is visually impaired the blind
person with a disability the disabled, handicapped
person who is deaf, person who is hard of hearing suffers a hearing loss, the deaf
person who has multiple sclerosis afflicted by MS
person with cerebral palsy CP victim
person with epilepsy, person with
seizure disorder epileptic
person who uses a wheelchair confined or restricted to a wheelchair
person who has muscular dystrophy stricken by MD
physically disabled crippled, lame, deformed
person without a disability normal person (implies that the person with a disability isn’t normal)
unable to speak, uses synthetic speech dumb, mute
seizure fit
successful, productive has overcome his/her disability; courageous (when it implies the person has courage because of having a disability)
person with psychiatric disability crazy, nuts
person who no longer lives in an institution the deinstitutionalized
says she/he has a disability admits she has a disability
Actions
Outlined below are the “Ten Commandments of Etiquette for Communicating with People with Disabilities” to help you in communicating with persons with disabilities.
When talking with a person with a disability, speak directly to that person rather than through a companion or sign language interpreter.
When introduced to a person with a disability, it is appropriate to offer to shake hands. People with limited hand use or who wear an artificial limb can usually shake hands. (Shaking hands with the left hand is an acceptable greeting.)
When meeting a person who is visually impaired, always identify yourself and others who may be with you. When conversing in a group, remember to identify the person to whom you are speaking.
If you offer assistance, wait until the offer is accepted. Then listen to or ask for instructions.
Treat adults as adults. Address people who have disabilities by their first names only when extending the same familiarity to all others. (Never patronize people who use wheelchairs by patting them on the head or shoulder.)
Leaning on or hanging on to a person’s wheelchair is similar to leaning on hanging on to a person and is generally considered annoying. The chair is part of the personal body space of the person who uses it.
Listen attentively when you’re talking with a person who has difficulty speaking. Be patient and wait for the person to finish, rather than correcting or speaking for the person. If necessary, ask short questions that require short answers, a nod or shake of the head. Never pretend to understand if you are having difficulty doing so. Instead, repeat what you have understood and allow the person to respond. The response will clue you in and guide your understanding.
When speaking with a person who uses a wheelchair or a person who uses crutches, place yourself at eye level in front of the person to facilitate the conversation.
To get the attention of a person who is deaf, tap the person on the shoulder or wave your hand. Look directly at the person and speak clearly, slowly, and expressively to determine if the person can read your lips. Not all people who are deaf can read lips. For those who do lip read, be sensitive to their needs by placing yourself so that you face the light source and keep hands, cigarettes and food away from your mouth when speaking.
Relax. Don’t be embarrassed if you happen to use accepted, common expressions such as “See you later,” or “Did you hear about that?” that seems to relate to a person’s disability. Don’t be afraid to ask questions when you’re unsure of what to do.
This information came from three sources: The Office of Disability Employment Policy, Guidelines to Reporting and Writing About People with Disabilities, produced by the Media Project, Research and Training Center on Independent Living, 4089 Dole, University of Kansas, Lawrence, KS 66045, and Ten Commandments of Etiquette for Communicating with People with Disabilities, National Center for Access Unlimited, 155 North Wacker Drive, Suite 315, Chicago, IL 60606.